About us

We are a hard working, family of eight. Swimming in the sea when we aren't busy on our small holding. Daddy dragon has to work away a lot, so this blog is to let him keep up with our adventures at home.

Friday, 23 June 2017

Refusing to give up


Food play has become our daily ritual


Our attempt to keep hatchling no7 connected with food.


She loves the opportunity, which is really rewarding.


Though, it is an exercise in mess.


She thinks hidden toys are funny.


And she loves to feed her toys.


Her tweezer,


And cutlery skills are coming along well.


She likes being the chef


And isn't bothered by temperature.


Learning our shapes,


And mixing textures.


We are trying again and again.

Refusing to give up.

Wednesday, 21 June 2017

This boy



He is so clever and silly.

He comes off the bus, a flurry of dropped papers, half worn clothes and a great big smile.

So thankful for  him.

First stop heading home!






Difficult to express


It is so difficult to blog, when life feels stuck in limbo.

We are home from hospital.

Yet, we wait, to return.

It is a terrible feeling to leave hospital, hopes dashed, no cure granted.

Just waiting, knowing the journey is long and blurry. We have only a vague idea of where life will take us next. While I suppose that is always true, it feels more acute in the minutes and hours and days of waiting for the phone call - to say drop what you are doing.

Or worse, that the delicate balance we are maintaining is thrown out of whack, and must go back not on our schedule, not on the doctors schedule, but on blind panic.


I never understood what it mant to have a sick child, to be constantly on edge. 

To replay every conversation I have had with her doctors aroumd in my head,wishing I could articulate and advocate better on her behalf.

It is so frustrating that the sun is out amd the skies are blue, and I feel none of the care free summer days that I long for.

We barely have time. 

Between all the appointments and everything else, we are running hard.


And then she smiles, and shines her absolute delight at the smallest of things, and I am renewed, ready to get back in and continue on. 

Thankful, that she works so hard to be here with us. 

Monday, 1 May 2017

My view


This is my view of the world just now,when not sat in a row of brightly painted cot trolleys in the medical ward.


This is the parent lounge - the exclusive clun for passholders only.
Admission is over rated.


And here hatchling no7. 
Our tough little lady.

There haven't been a lot of blog posts lately because the horrible part of lomg term conditions is they progress slowly until it is suddenly a very big problem.

When I have more than a second to slurp back a boiling hot vending machime coffee, I will update with our plans and adventures for Spring.


Monday, 27 March 2017

A fine start


The skyscape in Orkney changes mood and emotion 

with every breath.

The day begins with pinks, purples, and oranges,

before clearing out to a wide, bright blue.

And then when it all feels a bit too ambicious,

it hides under a foggy duvet.

I feel foggy duvet, 

but the sky says, it is ambicious.

Big old bully.

Off we go, being thankful, for a fine start to the day.

Sunday, 26 March 2017

Her belief in the goodness of all creatures


This goregous highland coo was the latest creature, our hatchling no2 tried to lure home. 

Picture the scene, a little picnic by the sea...

I look around, I am a hatchling and a punnet of grapes short.

Off accross the sand bank, hatchling no2 has climbed, and is now in full on persuade mode.

Isn't he pretty? Let's keep him!

Uhuh, so pretty. 

Sooo big.

Too big, 

for us to manage.

Pretty, pretty please!

This hatchling, never asks for sweets in the shop.

She never asks for toys, or clothes, or shoes.

But the beasts, big and small.

She wants them all.

I love that about her.

Her genuine belief in all creatures and the spiritual wellbeing she gets from connecting with them.

Sunny Sunday


For Epilepsy Awareness day


There is nothing that I would ask anyone to do,

But there is something that I would ask everyone to stop doing.

Stop assuming,

That tantrumming child in the supermarket, 

Might be having a seizure, 

That parent who is in front of you in the aisle, with the baby grizzling in the trolley,

Might need to get her milk bought, and out to the car - just as quickly as you,

Do not assume and shove past her.

That child who still can not walk,

Do not assume it is lazy parenting,

Why is she still being carried about?

See how confident you might feel with some myclonic tremours knocking your balance astray.

Do not assume,

Just let people be.

And maybe give a little patience,

Because they might be fighting a battle you can neither see, nor understand.

And the least you can do is not add to their burden.



Saturday, 25 March 2017

A picture window


This is photo was taken just along our road.

A wee snapshot, of our bay.

It tells a story,

not the whole story,

and yet it makes a fine summary,

of the view,

does it not?

Blogs are a lot like that. This wee peek at a small framed view of the world.

And it makes me consider if I shouldn't more whole heartedly blog on a more open scale.

More than just photos.

How much should a blog share about a family?

I suppose that queries how much a family might like to connect with other families?

I am starting to feel like it would be very nice to find more of our community, out there, somewhere.

Maybe.